Woke up today with my bones feeling weak and my shoulder joints made it hard to have a decent sleep. My left ass cheek muscle albeit barely existing feels like I got a Charley horse. Been this way since I wrecked my leg, which I'll get to one day. And if you know me at all you know I don't have an ass. Fucker just disappeared around 2003 I think. Whatever. Anyways so I'm watching Seinfeld reruns which I can watch forever, and I started to think about how I ended up with renal failure/kidney disease. I'm not sure many people understand how I ended up with it. It leaves (at the very least) a bitter fucking taste in my mouth.
A bunch of years ago in (I get confused sometimes) 1986, I think, I was in fifth grade. My cousins came to visit from Calgary for the weekend. I think it was May or something. My family and my cousins, uncle, aunt, went to the amazing feat called West Edmonton Mall. Great fucking spot to go when your a kid. Fantasy land(which it used to be called), not this Galaxy Land bullshit that had to happen because of Disney. Fuckin money hounds. Anyone who's been there as a kid knows it rules! Rides, parks, games you've got it all. Anyway my cousins and I and my sister, I don't think my brother came, were playing in the park which had all these huge long tubes that you could slide down. I was at the top of one with my legs inside and my hands hanging on to the top so I was kind of swinging my body in and out of the tube. I made one last swing and let go of the top but my butt(haha) wasn't lifted high enough and I smashed my tail bone on the edge of the outside of the tube. Well fuck me did this hurt like hell. I slid down to the bottom thinking, man that fucking hurt alot but walked it off and finished having fun. A couple of weeks later I was having a sleep over at a friends place....I remember world cup soccer 86 games were on t.v....and we slept in the basement watching games...waking up on the couch which was full of holes and lumps it felt like i had a charley horse in my ass cheek...kind of like today...i figured it was from the bad sleep on the bad couch.....i can't remember how long this pain in the ass lasted(not as long as some of the relationships ive been in thank christ), but i wasn't very concerned....i mean how many fucking kids are thinking about getting a disease...kids think about playing sports, collecting hockey cards, finding dads skin mags, and in my case trying to draw Iron Maiden covers...around June i can vaguely remember finding a lump sticking out of my tailbone...and a fairly big lump...probably 2 inches long and sticking an inch out from my body...well this shit aint normal and i can't play soccer, which was half my world....the next few things i remember are kind of sketchy but im sure you'll get it...i ended up going to the doc in St.Albert, was admitted to the hospital, which scared the shit outta me....and they did a biopsy to see what it was....it turned out to be a tumor, yup it was cancer...it was called Ewings Sarcoma....now i didn't really understand exactly what was gonna happen but that summer i started chemotherapy and had a fuckload of tests...some of which i'll never forget due to the 30 fucking cups of glue they make you drink pre test...one test i remember involved the docs getting my bone marrow from my tailbone, i think, they were taking samples of something from that area...all i recall is a huge fucking needle, me laying on my stomach, and alot of nurses...sounds pretty fucking erotic yes?...well they stuck this bloody needle into me afew fuckin times to get what they needed....man, i wish i had those screams that came out of me that afternoon on tape....the grim reaper probably shit himself with fear....so months of chemo started with visits to the cross cancer institute every thursday(i think)....my parents have better knowledge of dates...intravenus drugs like Aidriamiacin was known to have an effect on the heart later in life...it went in my arm orange and came out turning my piss the same color a while later...another i.v. drug called vincristine was pretty fucking strong...i think this was the one that made me really fucking sick....by thursday afternoon id be at home puking any and everything in my stomach until saturday evening...so basically i didn't eat jack shit..,..it just came up...and when I say puking I mean like heavy duty style vomiting....my stomach would be squeezing itself so tight with nothing in it so all that comes out is yellow and green bile and acid...
As well as making me sick as hell the drugs also made all the hair on my body fall out....that summer i remember the hair on my head would become matted and then I could just pull out big chunks of it...it was everywhere....then by the time school started it was almost gone....not an easy thing going to school looking like I did....kids are mean...they stare, actually i also would see adults staring at me like they were seeing a creature from another planet....most kids i went to school with knew and they understood so they were really helpful in it not making a difference to them....another of the drugs i was getting was definitely the worst,...well maybe not the worst but it led to a huge change in to how i'd have to live the rest of my life...it's called cyclophosphomide...7 little yellow pills every day for a few months....now when I was young i hated taking pills with a friggen passion...the sensation of them sliding down my throat was enough to get me gagging...most kids hate doing it...so taking these was damn hard, and my dad and i used to try and come up with ways to beat it...-a little side note here- while on chemo I hated water, I MEAN I FUCKING HATED IT!!!!...my mom told me a few years ago that alot of patients getting chemo dislike water for some reason....anyhoo my dad and I would try anything, like i remember putting the pills into the center of a pickle and trying to get er down....wtf? were we thinking?...have to continue this later....have a nice day..
Thursday, May 9, 2013
Kidney disease sucks
Woke up today with my bones feeling weak and my shoulder joints made it hard to have a decent sleep. My left ass cheek muscle albeit barely existing feels like I got a Charley horse. Been this way since I wrecked my leg, which I'll get to one day. And if you know me at all you know I don't have an ass. Fucker just disappeared around 2003 I think. Whatever. Anyways so I'm watching Seinfeld reruns which I can watch forever, and I started to think about how I ended up with renal failure/kidney disease. I'm not sure many people understand how I ended up with it. It leaves (at the very least) a bitter fucking taste in my mouth.
A bunch of years ago in (I get confused sometimes) 1986, I think, I was in fifth grade. My cousins came to visit from Calgary for the weekend. I think it was May or something. My family and my cousins, uncle, aunt, went to the amazing feat called West Edmonton Mall. Great fucking spot to go when your a kid. Fantasy land(which it used to be called), not this Galaxy Land bullshit that had to happen because of Disney. Fuckin money hounds. Anyone who's been there as a kid knows it rules! Rides, parks, games you've got it all. Anyway my cousins and I and my sister, I don't think my brother came, were playing in the park which had all these huge long tubes that you could slide down. I was at the top of one with my legs inside and my hands hanging on to the top so I was kind of swinging my body in and out of the tube. I made one last swing and let go of the top but my but wasn't lifted high enough and I smashed my tail bone on the edge of the outside of the tube. Well fuck me did this hurt like hell. I slid down to the bottom thinking, man that fucking hurt alot but walked it off on e
A bunch of years ago in (I get confused sometimes) 1986, I think, I was in fifth grade. My cousins came to visit from Calgary for the weekend. I think it was May or something. My family and my cousins, uncle, aunt, went to the amazing feat called West Edmonton Mall. Great fucking spot to go when your a kid. Fantasy land(which it used to be called), not this Galaxy Land bullshit that had to happen because of Disney. Fuckin money hounds. Anyone who's been there as a kid knows it rules! Rides, parks, games you've got it all. Anyway my cousins and I and my sister, I don't think my brother came, were playing in the park which had all these huge long tubes that you could slide down. I was at the top of one with my legs inside and my hands hanging on to the top so I was kind of swinging my body in and out of the tube. I made one last swing and let go of the top but my but wasn't lifted high enough and I smashed my tail bone on the edge of the outside of the tube. Well fuck me did this hurt like hell. I slid down to the bottom thinking, man that fucking hurt alot but walked it off on e
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